In the past couple of days, Stacy's been writing (here, here, and here) about the important topic of how the ever-broadening categorics of mental illness undermine the concept of individual agency on which civil societies are built, and how malignant narcissists find in the therapeutic gobbledygook a bevy of excuses for their 'alternately enabled' behavior. The incident that inspired Stacy's writings is the Sandy Hook massacre, and more particularly the legacy media reaction to the atrocity.
I agree that the proliferation of categories of mental illness is a boon to the 'therapeutic community,' and that much of it is a racket. The federal government's attack on the profession of medicine, in which apparatchiks and bean counters are given the power to determine what will or will not be paid for exempts a variety of pseudo-scientific quacks from the stringent standards that are placed on well-trained doctors and nurses, and their liability exposure is one of the ways Big Government intends to drive them into the ranks of government employees. Some of the dangerous legislative and bureaucratic lunatics to whom Stacy alludes even want to see medical professionals unionized, because everyone knows that unionized government employees always strive to do the utmost that they can, because those unions exist to make sure that they are held to the highest standards of accountability, which is why the UK's National Health Service is so deeply humane and scandal free. New Age quacks, on the other hand, receive pay-outs from Medicare without any regard to the efficacy of their treatments, and they can't really be held accountable because . . . caveat emptor applies to 'faith-based' medicine. Which is "differently enabled" medicine, and screw that Enlightenment crap.
For example, if a person is re-admitted to a hospital within 45 days of discharge, whether or not the re-admission is due to a condition medically unrelated to the one for which that person was treated in the hospital, or the result, say, of a slip and fall or even an auto accident, the hospital will be fined by the government, because having been admitted to the hospital that person now has the sort of implied health warranty a certified used vehicle sold by Toyota ought to have. However, you will not find alcohol and drug rehab programs subject to the same ridiculous conditions. If a person leaves one of those programs and relapses within 45 days, which is a common occurrence, no fine will be imposed, nor should it be. Whether specific programs at specific locations actually realize a basic level of success in outcomes, though, Big Government seems to have little interest in determining under a reasonably stringent methodology. Obama can lie about his mother's treatment by those horrible health insurers, when in fact her claims were paid in full, and liberals can declare that no person or family should have to lose their life savings in desperate medical straits, but in fact private rehab facilities build Taj Mahal physical plants on the dimes of desperate parents who will mortgage everything to get their meth-addled children out of the sewer.
And you know, it's those conservatives who are anti-science.
Where I do depart from Stacy is where he chooses to go off on Liza Long's account of her 13-year-old son, suggesting that if Liza and people like her used more discipline, things wouldn't have gotten so out of hand in the first place. And the reason that I disagree with Stacy's assessment is that I have been in the place Liza Long finds herself, with regard to my then 9-year-old son, Aidan. I've recounted that nightmare before. There were times when I put him in an arm-bar or a headlock in order to prevent his violence. But when you have a child who is alternately sobbing that he's a ghost, and that you've killed him, physically attacking his parents and siblings over imagined insults, and smearing feces on his bedroom wall, you have seriously to conclude that he is in the grips of serious psychosis.
That's a very shorthand way of stating what I and my family, Aidan not the least, went through. For over half a year, Aidan was institutionalized at the Brattleboro Retreat, a two and a half hour drive from where we lived. Mary and I alternated driving there just about every day, that entire snowy winter, while they attempted to find medication that would control his psychosis, leaving after work and arriving home 6 hours later after a short visit during which he might or might not interact. Once, he asked Mary whether she was really his mom. He believed that his real parents had been replaced by facsimiles.
I can say that I meted out a lot of discipline, including long hikes at dawn in weather of all sorts, in an attempt to get him reconnected physically with his body and surroundings, since Aidan loved to be outdoors. His increasingly palimpsestic drawings chronicled his growing confusion. What had once been the ability to make connections among disparate phenomena was now hyperconnection. The intellect must synthesize, but it must also distinguish. It was all collapsing in a Babel.
Childhood Onset Schizophrenia is rare enough that Aidan's very accomplished attending physician hadn't ever seen it, so we decided the only way that we were going to get the solid diagnosis that we needed would be to take him to the NIMH. The method at the Brattleboro Retreat was to provisionally diagnose, prescribe on that basis, and find out what kind of results a particular medicine appertaining to a particular diagnosis would bring. Inexorably, we inched towards schizophrenia, and Aidan's response to clozapine, which is pretty much the gold standard in anti-psychotic medications, seemed to seal the deal. Once at NIMH, Aidan had to be stripped of his medication, allowed to relapse into delusion, and then be built back up a couple of times, so they could try their hunches at other meds that might reveal another diagnosis, but at the end of it all, Aidan was diagnosed as suffering from Childhood Onset Schizophrenia and placed on a drugs regimen that controlled both the psychosis and the side effects of the clozapine.
Aidan had read at or above grade level when he became ill. He had been a popular kid in his class, a constantly active risk taker, a good athlete. He was a particulary gifted artist, able to draw objects in perspective, animals in motion, crystals (with superhuman precision), plants, faces. All of that was gone. Schizophrenia spreads like a fire from one end of the brain to the other. MRI images showed that compared with his siblings, Aidan's brain had ceased to record the development of the folds in the cerebral cortex that would be typical of his age. He would have to re-learn how to read and how to write. Heartbreakingly, his memory told him that he was no longer the same person on whom those impressions were inscribed, and he, and we, had to accept this.
It was very hard.
Yet, compared to the experiences of other families whom we met at the NIMH, flying down there alternate weekends throughout Aidan's long initial stay, we felt fortunate to have arrived at our diagnosis as quickly as we did. Some had wandered in the wilderness for years. I have to say that these were all people who would not think of relinquishing the care of their child to an institution, though I know such parents do exist. The road to getting a diagnosis and an effective plan of treatment is so difficult, despite the efforts of organizations such as NAMI, which does wonderful work, that only the most motivated parents arrived at the NIMH . . . or at least that is my impression from the ones I met.
From my reading of Liza Long's description of her son's behavior, I have to think that he's a likely candidate for the same diagnosis.
We still don't know what's wrong with Michael. Autism spectrum, ADHD, Oppositional Defiant or Intermittent Explosive Disorder have all been tossed around at various meetings with probation officers and social workers and counselors and teachers and school administrators. He's been on a slew of antipsychotic and mood-altering pharmaceuticals, a Russian novel of behavioral plans. Nothing seems to work.
Yeah, that's called the bargaining stage of grief. Zyprexa, which is what Michael is being given, is an antipsychotic, but one which receives low marks for the treatment of Childhood Onset Schizophrenia at the NIMH. Two of the other families we encountered there with schizophrenic sons (COS strikes boys at a rate of somewhere in the vicinity of 5:1 to girls, I would bet) had tried that medication and found the results unsatisfactory. It also has weight gain as a side effect, causing one of them to label the drug Zyporka. In all of the cases of parents of COS kids whom I've gotten to know well, clozapine has been found to produce the best results.
Institutionalization is desirable, in some cases; at least in comparison with the alternatives. Stacy quotes Ann Althouse on the aftermath of the mental-illness rights movement in the Seventies and Eighties, that saw many homes for the mentally ill closed, with the 'differently enabled' cast out on the streets, where they could fully enjoy the freedoms of homelessness, abuse, victimization, incarceration, drug addiction and the rest. The Carter and Reagan administrations played along with the standard bearers for the rights of the insane. They have died on the streets, from drugs, cops, criminals, hypothermia, alcoholism. They have ended up in prison, exposed to the tender mercies of fellow inmates and guards. They have been enslaved and exploited. They have disappeared, sometimes with the aid of people in the Death with Dignity movement, who have helped to disappear them.
The expansion of newly minted varieties of mental illness categories doesn't help people with severe mental illnesses, whose symptoms can be conned at a glance from an MRI. I'm not an expert any more than Stacy is, but borderline personality disorder just isn't in the same league. The diagnostic charts make their distinctions, but politicians and the general public tend to view it all as a lump of arcana, and to flatten the distinctions. If one category deserves treatment, then why don't the others? Obviously, under such conditions there's increased competition for the limited resources that have to be divided to address the clamorers for more, and obviously I can easily stand accused of special pleading. But to repeat an observation regarding my son, the intellect must simultaneously synthesize and make distinctions. The liberal always places the emphasis on synthesis, which is why the liberal always has some form of moral equivalency on his lips, and which is why, also, Stacy rightly states that a diagnosis, and particularly a self-diagnosis, ought not give a jackass sociopath carte blanche to perform whatever (as Ace puts it) "I gotta be me" jackassery he whimsically and viciously decides to unload behind a shield of "I can't help it." The continual expansion of the idea of mental illness by the therapeutic community, headed towards encompassing the entirety of the human race, increasingly usurps the Christian concept of "original sin," with the distinction that the receiving of the host that bridges the gap between Divine Integrity and our grovelling sinfulness is displaced by the prescription of pharmaceuticals that can point us in the direction of some putative normalcy, as determined by a cadre of psychologists, many of whom are themselves highly neurotic by the terms of their own diagnostic methods, and who derive their power from state bureaucracies which have their own agendas and their own ideas of what constitutes normalcy.
There's nothing really new about this reconstitution of religion in the guise of the Almighty State. Christian teleology, which liberals like to deride (and in some cases, in my opinion, with good reason) was stolen and repurposed by Marxist inevitability, which Kruschev famously invoked as he banged his shoe on the podium, promising that the Soviet Union would bury the US. Instead, they substitute their own teleologies. When, in the wake of the Sandy Hook massacre, Obama goes on television to say that "we must change," he doesn't mean that he is part of that we. He means that you and I must change, because we are not as enlightened as Obama and his co-ideologues. He means that the idea of America must change, the idea of being American must change. Illegal aliens have the right to be Americans, but Americans mustn't think they should enjoy the liberties prescribed in the Constitution and Bill of Rights, which must also change.
It all comes down to the formula, "Life is hard; surrender your agency and we will make it easier." The formula, which Stacy reproduces, from Liza Long's piece, that her son is "subject to violent outbursts," certainly reflects that subjection, that idea of surrendered agency. The Christian, by contrast, assumes the via crucis in an attempt to become more Christ-like. It calls for sacrifice, responsibility, agency, introspection, honesty. Allah wants slaves? Translate that into subjection to liberal policies, and you have the fundamental idea of Obama's New America. Still, there are subjects to mental illness, who have had their agency evaporate to some degree. I know, because my son is one of them. For all I know at this point, the shooter was also one, but if that is the case the premise that people who suffer from serious mental illness are merely differently enabled, cognitively speaking, is certainly at least as much to blame for this atrocity as are guns. And Liza Long is not wrong to point that out.
In certain cases, when it suits their agendas, leftists will make distinctions. Therefore, it is kosher for Native Americans to take peyote as part of their religious ceremonies (which doesn't bother me), but Catholic and other Christian agencies and institutions mustn't try to exempt themselves from having to pay for abortion insurance. On the other hand, the lion's share of the exemptions from ObamaCare must go to the unions that pushed so hard to get it, and . . . card check.
Some of you kind people will ask how Aidan's doing, and I will say that he's leading as normal a life as he possibly can, and that he's an eminently lovable person, and that he's generally happy, though sometimes a bit lonely, and that his family is very grateful, God bless and keep him. We are particularly grateful that he doesn't have to be institutionalized, though I pray that when we are gone he is protected.



Starless on December 17, 2012 at 1:53 pm said:
Every time I see or hear the word "Aspberger's" used in association with the monster who shot up Sandy Hook Elem. I grind my teeth as I'm reminded of the idiocy of the term "Autism Spectrum Disorder". There's an ocean of difference between someone who has difficulty with nonverbal communication and empathy and someone who is so psychically damaged that he would shoot up a school. ADD, ADHD, Aspberger's…there's so much over-diagnosis of children these days that kids with no real problem can feel obligated to acquire one and kids with a real problem can get lost. For the former, we may need a little more of this kind of solution.
jefferson101 on December 17, 2012 at 8:39 pm said:
I'm going to opt out of this one completely, other than offering my thoughts and Prayers for Aidan and his family. May Our Lord preserve and help them all.
I've created enough hate and discontent around various blogs in the past by saying much of anything more than that.
Dan Collins on December 18, 2012 at 12:41 pm said:
Thanks very much, jeff, and despite all the crap, I hope your Christmas is wonderful.
Dede on December 17, 2012 at 10:24 pm said:
Dan, all I have to say is… I love you.
Dan Collins on December 18, 2012 at 12:40 pm said:
Aw, thanks, Dede. I love you, too . . . and merry Christmas!
timb on December 17, 2012 at 10:30 pm said:
Dan, you have told a wonderful story of one of the most debilitating and misunderstood diseases in this country. Stacy McCain is a cracker moron (I am aware you do not agree), and, as usual, his half-educated ramblings miss their mark. I hope his moronic takes did not hurt you too much.
I understadn you will most like delete my comment, but I just want to tell you how badly I felt for you and your wife. Good luck with your son and I hope medical science (largely funded by the NIH, a government agency) can help
Dan Collins on December 17, 2012 at 11:08 pm said:
Yeah, I don't agree. Stacy's not a moron; he's just wrong about this particular issue, IMO. Thanks for your good wishes, which are appreciated. We certainly feel fortunate about how well Aidan's doing, and we are grateful to the help we've gotten from the NIMH.
Don't fall into the trap of believing that just because I, like other conservatives, believe in smaller government, that we don't feel that there are government agencies and institutions that are important, or that we don't believe that there should be government funded medical research. Most of us are more concerned with wastefulness and agenda-driven make busy programs that continue to be funded despite poor productivity or even counter-productivity. Once those programs and agencies are in place, it seems almost impossible to terminate them. Remember, ACORN, despite its numerous abuses, actually sued the government under a bizarre bill of attainder theory that, had it prevailed, would have made it difficult for government to cut the funding for any organization which once had enjoyed its largess. And I link in the above piece, too, to a suit that just did prevail, brought by teachers in New York state, which declared in essence that they had a right to continued employment despite not being able to reach very minimal standards, because their inability to reach them was somehow a racist determination on the part of their examiners, and without any consideration of the effect on students of exposure to teachers who are fundamentally ignorant.
Well, we're out of money. Now there have to be cuts. Had our legislators made wise decisions on where to spend in the first place, we would not be at this pass. If you've read any of Meep's posts here, you'd know just how poor their choices have been, on the federal, state, municipal . . . all levels.
The NIMH and the NIH in general have been affected. Even the study in which Aidan has participated for the past 11 years has been affected. But, you know . . . Sandra Fluke thinks we ought to be funding sex changes, and not just for genetic hermaphrodites.
Starless on December 18, 2012 at 8:05 am said:
The only problem with Stacy's argument is that he sounds like he's going too strong for the "Lock 'em up" solution. Committing someone to a mental institution is only a hair's breadth away from putting them in prison — that is to say, denying them all of their personal liberty as a citizen. For some — severe psychotics — it's necessary and even beneficial for everyone but we have to be careful what we wish for and remember that for some time now Leftist activists within the psychiatric community have been trying to make a serious case that holding conservative views is an indicator of mental disorder. Not just euphemistically "crazy", but really prone-to-violence, dangerously disturbed, and in need of gov't control.
When someone starts to talk too much in "Lock 'em up" terms, I start to visualize bureaucratic activists salivating at the new powers they're about to receive and, therefore, it's something that has to be considered very carefully.
*CORRECTION: I see that above I misspelled "Asperger's". I really have to stop thinking of it as "ass burgers".
Dan Collins on December 18, 2012 at 12:40 pm said:
Incarceration is definitely not the best outcome for most, but it is the best outcome for some.
Starless on December 18, 2012 at 1:34 pm said:
Indeed.
Paul Lemmen on December 18, 2012 at 8:42 am said:
Great comment and very insightful (and heart-wrenching) article. Both Barb and I will keep Aidan and your entire family in our prayers and daily Mass intentions. May our Lords Divine Mercy provide comfort and ease to you all.
Dan Collins on December 18, 2012 at 12:39 pm said:
Thanks very much, Paul, for thinking of us, and I hope you have a wonderful Christmas.
Taxpayer1234 on December 18, 2012 at 12:03 am said:
Dan,
I'm sorry to hear about your son's illness. It sounds like he is at a stable point and able to be home with family, which is great. My family has also endured the ravages of severe mental illness. My uncle was diagnosed w/paranoid schizophrenia in his early twenties. He was in the service at the time of his breakdown, so the VA has been taking care of him for over 40 years now. He's been institutionalized most of that time. During the deinstitutionalization years, the VA was also arm-twisted into pushing out those they thought could make it. What a joke. That was a disaster for my entire family.
He's remained institutionalized since the disastrous 'experiment' with independent living. The treatment he's received over the years had been sometimes poor, indifferent, and horrific. But the last 15 years, it's been pretty good. He's now in a small residential center where he gets not just the treatment but also the calm environment so desperately needed by the severely mentally ill. He's nearing 70 and has long outlived the typical schizophrenic, so many of whom died young while fighting alone, medicated or not, of their own violence to themselves or from others.
I pray things change so that your son has a fighting chance for a long life after he reaches adulthood.
Dan Collins on December 18, 2012 at 12:15 am said:
Thanks very much for that, and I'm glad to hear that your uncle managed to find himself in a situation where he gets what he needs. You know, I'm pretty sure that it was because your family were relentless advocates for him. It's a lot of work, a lot of conflict, but it's essential that you never take no for an answer. So many of these people have nobody to advocate for them, and are unable to do it for themselves. They're the ones who are most in danger, and the ones who most need help.
Brother on December 18, 2012 at 1:35 am said:
I lost my brother a while ago; he was Manic Depressive, they said back then. Either brought on or worsened by 'self medicating' using basic street drugs. Our family knows the stories. We tried. We had the resources, we had the will, we had the desire. But my brother, for all of his problems, knew how to work the State System as only an inmate can. He was over 18, we were powerless.
Let me ask anybody who is saying something like "…the families should have…" should themselves take a long look at themselves… and shut up. You weren't there. When YOU get threats to YOUR life, YOU get protection, you get the authorities to count YOU as a victim. You make brave pronunciations about what would happen if…
But when it's your family, and you know from experience that in three days or so, they'll be out on the street, and as polite and affectionate and promising the friggin MOON to the authorities… and we are the bad guys. And we are told to take him back into the home, to put ourselves and our kids at proven risk… or we are abusing him.
If I had a solution, my brother would be alive. So you've got the upper hand on me there. But don't go after the families until you are willing to house and counsel and love those whose brains are this messed up. In your house. With your kids. For life.
Otherwise, shut up. I mean, really… just shut the hell up.
But if you want to hear something terrible: My brother's death was a relief. It was violent, it's still a bit of a mystery, a whodunnit. (The cops said he did it to himself, I'm not so sure. We weren't told for a week.) But for the family, we were free of a decades long threat. I wasn't happy… I'm crying as I write this. But I wasn't sad.
Dan, I cannot tell you how happy I am that a solution was found for you and your son. Progress is being made, DESPITE the people in the care system who are… sigh… insufficient to the task? I dunno. If it made sense, people wouldn't call it crazy.
As for Stacy, yeah, he's wrong, but he's being HONEST… and I'll hit the tip jar for that. Have, and will again.
Zilla on December 18, 2012 at 6:45 am said:
I am so sorry for what you and your entire family, including your brother, had to endure. May your brother rest in peace and may God wrap his arms around you & your family and give you comfort and healing.
Dan Collins on December 18, 2012 at 12:34 pm said:
I'm sorry that it worked out that way for your brother, and I hope that you don't think that I'm being critical of families whose experiences have been like yours. I was talking to Stacy last night, and one of the things I said was that it's sad that Aidan hadn't the time to learn a lot of things that people do when shizophrenia hits at the usual age of 18-22, but that on the other hand it was a blessing. We were able to acquire legal guardianship, and he understands the importance of staying on his meds, and he doesn't use drugs or alcohol.
It's much more difficult from that point of view when you're dealing with someone who has reached the age of majority, and particularly, as you note, when they've had a chance to size up the justice system. It's very hard to get a judge to transfer their rights to a guardian, often virtually impossible. Through NAMI, I've met a lot of parents in those kinds of situations.
I'm sure you and your family did everything within your power.
Brother on December 18, 2012 at 10:55 pm said:
Of course I wasn't accusing you of being critical of other families… I was venting I guess to the talking heads on cable and some of the clueless commenters I've seen online. It's a tough subject to be fully clear about in a comment… apologies for any confusion. And yeah, our family is okay, with help from Above for each of us in turn.
Joan of Argghh! on December 18, 2012 at 7:01 am said:
Bless you, Dan. Your son and your entire family are blessed to have such a wise and selfless leader at the helm of their lives. May God continue to grant you peace.
Moreover, this was as fine a piece of writing as I'm likely to see in a month's worth of posts around the Internet. Very well done, indeed.
Dan Collins on December 18, 2012 at 12:36 pm said:
Thanks, Joan, though I'm not going to cop to the wise part. I'm glad you think so, though, because I am vain.
Zilla on December 18, 2012 at 7:22 am said:
God bless you and your entire family, Dan.
Dan Collins on December 18, 2012 at 12:36 pm said:
Thanks, Zilla. Means a lot. And merry Christmas to you.
Sharon on December 18, 2012 at 10:31 am said:
My first job after graduating college with a degree in Psychology was as a teacher in a brand new school program designed to deinstitutionalize teens with varying diagnoses. Touring big hospital buildings with puke green walls and bars on the windows, it seemed like we were the righteous coming to rescue the poor souls locked away in these virtual prisons. Autistic, schizophrenic, didn;t matter. We were going to integrate them, educate them, socialize them. It was the beginning of a movement that had all the right motives, dedicated personnel, university researchers, psychiatrists and social workers all committed to helping restore this population to its rightful place in society.
After a frustrating year, I went on the run all kinds of non profit corporations and saw genuine success in working with certain populations, especially mentally challenged(retarded) who could be taught to care for themselves with supervision. But, it became clear that those with mental illness sometimes had behaviors which could just not be controlled in a community setting. yet, the powers that controlled the purse strings couldn't care less and continued to shut down institutional settings leaving no place for these people to go when the inevitable breakdown occurred. You could see the physical changes that preceded an episode. Changes in skin tone, affect, behaviors. It became obvious that this desease had a physical component that needed to be treated that was different from going to a therapist to help cope with a divorce or stress at work.
The only resource that I have seen have a genuine impact is the clubhouse model begun in New York at Fountain House. I sat on a board of a similar program in Worcester, Ma after many years out of the field. It is truly miraculous what they do. They recognize that no matter how grounded and stable an individual with mental illness may be at any given time, they can relapse in a heartbeat. you become a member, not a patient or client and the club is always there for you. They support employment, housing and social programs and are there when a member needs them. It is a worldwide movement and clubhouses share training with other clubs around the globe. So many individuals diagnosed with schizophrenia are extremely intelligent and listening to them describe how they handle this diagnosis which radically alters their lives is truly inspiring.
I cannot begin to tell you how much I admire you and how you have handled this, searching out the best for your son. There are some programs out there that actually know what they are doing. If you can find a clubhouse near you, you will find other families who understand and maybe help reduce some of hte anxiety about the future.
Dan Collins on December 18, 2012 at 12:38 pm said:
Sharon, thanks. Do you know whether there's a clubhouse in the Burlington, VT area, or where I can research that?
I think that your experiences might make for an important book.
serr8d on December 18, 2012 at 9:41 pm said:
Dan, wising you and your family the best possible of outcomes. I can tell by reading your words that you've sucessfully faced and overcome the challenges presented to you, one by one; you are an exemplar head of household. Your family is strong because you've crafted it strong.
Merry Christmas, and may God bless you and yours.
Jerry Wilson on December 19, 2012 at 8:56 am said:
Dan, you were, are and always will be a true gentleman; a thinker, skilled wordsmith and man of both faith and love. It is a privilege and honor to call you friend. God bless you and your family.
King Shamus on December 19, 2012 at 11:44 pm said:
I knew this post was going to be hard to read, which is why I waited a few days.
Aidan and your family is in my thoughts and prayers.